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I rarely post on these forums but having just had our first my thoughts are with you and your family. I really do wish you all the best. Fingers crossed all goes well.
 
Thanks guys.
Had his eyes open a bit today now his sedatives are being slowly taken down. Breathing is much improved starting to wean him off the ventilator.
Still waiting to see how the neuro team want to progress though the drain went in alright but they aren't certain it's in the exact right position yet.
 
Good luck mate. I sincerely hope he continues to improve. They are little fighters at that age and the Dr's and Nurses are amazing.
My nephew was born at 26 weeks and like your son suffered numerous bleeds and required a drain to be inserted as his spinal fluid wouldn't drain from his head properly. He spent around 6months in hospital before coming home.
He is missing a large portion of his brain as a result and Dr's gave him a similar outlook to your son. However, the brain can adapt at such a young age.
He is now 7 years old and despite being a little bit shorter than other kids in his school and a bit weaker on his right side than his left to look at him he is a normal happy boy that loves reading and writing etc
Naturally he faces some learning challenges but given the initial outlook he had he is doing fantastically well.
I hope your son has as good a future ahead of him. fingers crossed things work out for you and your family.
 
robj20 said:
Another CT scan this morning has shown he has water on the brain. So he's due in theater for neuro surgery at 8pm to have a drain inserted. They now risk damaging the healthy side of his brain with an uncomfortable high risk of death.

The doctors and nurses seem more amazed that we are holding it together and I honestly don't know how we are.
I guess we just have to keep hope that he will have something that resembles a life after all this.

I'm amazed the little guy is still going to be honest, born 35 weeks and only a week old to go through so much and still amazing the doctors.
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Both my twin boys were 33 weeks. You will be surprised just how tough the prem babies are. Tough wee buggers! Good luck.
 
Hodders said:
@robj20 any updates on your lads condition?

Hope it's been a positive few days for you all.
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We've been transferred back to St Mary's over the weekend as they were happy all he needs now is weaning off his drugs and ventilator. Still has the EV drain in which will be there for a fair few weeks yet until they decide it's no longer needed. Worst case with that he needs a shunt putting in for life.
Then it's monitoring his development to see what level of disability he gets.

They're happy at least that both his eyes respond as they should regards movement and dilation.
His legs both seem to move equally but his right arm definitely shows less movement.
 
robj20 said:
We've been transferred back to St Mary's over the weekend as they were happy all he needs now is weaning off his drugs and ventilator. Still has the EV drain in which will be there for a fair few weeks yet until they decide it's no longer needed. Worst case with that he needs a shunt putting in for life.
Then it's monitoring his development to see what level of disability he gets.

They're happy at least that both his eyes respond as they should regards movement and dilation.
His legs both seem to move equally but his right arm definitely shows less movement.
Click to expand...

Thats all positive, good luck I can't imagine how scary this must all be!
 
Hi all.

So after 2 years of trying my Mrs is pregnant! She's 13 weeks along and all is well so far.

Like many I'm super excited and can't wait to meet the little one!! I have subscribed to this thread as I'm sure there will be questions asked for personal experiences!

Robj20. Good to see positive news and hope your family stay strong bud.
 
My Mrs is expecting our 1st in 3 months. Im 44 :-( Really delighted mind you. We had a tough time last year but everything is going well. Just seeing my Mrs feeling so happy (most of the time) is brilliant. Its a boy so I am particularly over the moon.
 
Congrats to the expecting dads. Its a hell of a journey. I taught my daughter the "high five, down low, fist bump and blow it up" routine today, so she'll be the coolest toddler in playgroup.
 
Heys guys,

Just wondering if you have any advice/ gone through the same thing?

I have literally not talked/seen to anyone outside of work since the baby was born (6months ago).

As soon as i get home from work im handed the baby and my missus buggers off to the gym. I haven been to the gym since the baby was born.

My missus on the other hand goes out with the girls to coffee shops and baby groups all the time.

It just seems like all i do is either work or look after the baby.

Is this normal at this age?
 
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