Update on my health

[Nitefly]

Rob Rob Rob Rob Rob Rob-Rob-Rob, Rob-Rob-Rob, Rob-Rob-Rob \o/

Get better soon!

 

[Yadda]

Good to hear you're back home, Rob. All the best.

 

[robfosters]

Over a week since the op now. Still in quite a bit of pain, but settling down. Still feels quite swollen but I’d imagine that’s normal when your muscles have been cut right through.

The spoils of victory lol

Spoiler

 

[kindai]

Tis but a flesh wound

 

[robfosters]

Well I’m back from my transplant assessment. 3 days of test and talks. I feel pretty drained.

I won’t get an answer about my eligibility for a little while, but it looks as though I need a heart and liver transplant. I also would have to stay in hospital, up in newcastle, until a donor becomes available, which on average is over a year. Pretty harrowing stuff and a big decision to make as it will affect my family in a major way.

I’ll let you guys know when I get a decision.

 

[Diddums]

God speed Rob. I genuinely hope we get to wish you another 50 haby birtdoys at least

 

[Colonel_Klinck]

Good luck to you Rob. The idea of a year in hospital just waiting for the off chance of completable donor organs to become available sounds tough before the terrifying operation that would follow. Threads like this do put things in perspective. Wish you all the best.

So I had my CT scan today to see if my liver is healthy enough to withstand a heart transplant. Needed the contrast dye via IV, but the first cannula hit a nerve, which was bloody painful. Second one went in ok though. Bit of a weird feeling when the dye goes in. Thought I’d ****** myself lol. Now I have a keep everything crossed nervous wait for the results.

Also had a preassessment for my ICD change which I will be having on 12 March.

I had to have a CT scan with contrast a few month back for a traumatic pneumothorax. They said I'd feel a warm sensation as it was injected, which I did but it then centred on my anus which actually made me lol it felt so odd. Not a great idea with 5 broken ribs and 1 working lung.

 

[kindai]

I also would have to stay in hospital, up in newcastle, until a donor becomes available, which on average is over a year.

Heh they'd want you to be in hospital for that year, is that purely to be able to get you into surgery quickly if needed should one become available or some other reason?

 

[Vidar]

@robfosters Hopefully will all be plain sailing for you pal, I did going on 5 months and it was hell for my family and really tough for me. Keep us posted mate.

 

[Deluxe1]

Well I’m back from my transplant assessment.

Hope it works out and if you do opt to go up north they find you a donor sooner rather than later.

I'm sure there are lots of members close to the freemans that could pop in to visit or help you out in other ways.

 

[Ryan-3]

Heh they'd want you to be in hospital for that year, is that purely to be able to get you into surgery quickly if needed should one become available or some other reason?

It will minimise the time that the organ is outside of a functioning body, as the person who requires it is ready as and when the organ becomes available.

Hope it goes well for you OP. They're good those lot, so you'll be in good hands.

 

[nightrider1470]

Best of luck x

 

[rebel rebel]

Keep fighting Rob! Because of my situation I've spoken to lots of transplant patients and surgeons over the last few years. It's amazing what they can do and they"re always improving on techniques.

Why Newcastle and not the hospital in Cambridge? I forget it's name.

 

[Gray2233]

I spent a fair amount of time in the Freeman myself when I was younger, one of the best hospitals in the country (especially when it comes to transplants) so you're in good hands.

Wish you all the best going forward.

 

[kindai]

It will minimise the time that the organ is outside of a functioning body, as the person who requires it is ready as and when the organ becomes available.

Only reason I ask is a fair few shows recently basically show patients living at home but with an always on phone and if they get the call no matter the time they drive immediately to the hospital and prepped (sometimes before even knowing if the organ is viable). Maybe that policy has changed.

 

[Deluxe1]

Time is of the essence once a donor becomes available.

 

[GGizmo]

Well I’m back from my transplant assessment. 3 days of test and talks. I feel pretty drained.

I won’t get an answer about my eligibility for a little while, but it looks as though I need a heart and liver transplant. I also would have to stay in hospital, up in newcastle, until a donor becomes available, which on average is over a year. Pretty harrowing stuff and a big decision to make as it will affect my family in a major way.

I’ll let you guys know when I get a decision.

Keep on fighting bro!

Hopefully it won't be a year these days.

 

[el_dazza]

All the best Rob, things like this will never be a quick process but here's hoping it is and everything works out

 

[Ryan-3]

Only reason I ask is a fair few shows recently basically show patients living at home but with an always on phone and if they get the call no matter the time they drive immediately to the hospital and prepped (sometimes before even knowing if the organ is viable). Maybe that policy has changed.

For myself, that would probably be the case as I'm only 20 minutes from the hospital in question. The OP is a number of hours away I believe. I'm surprised by there not being a hospital in London that would be capable of carrying out the op. to allow for what you've said.

 

[Martynt74]

All the best Rob.

I know when my brother in law was in critical care they had "family rooms" which was a bit like a hotel where you were on site all the time. Presumably there's some kind of special unit for situations like this where it's more of a residential unit?