OcUK Dadsnet thread

robj20 · 6 Oct 2023 at 08:40

ColdAsIce said:
Why not?

Baby Georges story

Those of you from the Dadsnet thread will know the story but it gets lost in there so thought i would make a standalone thread as there seems a lot of interest. Sorry this is very long and its a bit of a jumble, during it all i lost all concept of time. The wife and I have had a very unlucky...

forums.overclockers.co.uk

He isn't aware of his actions most of the time, he gets very frustrated and doesn't know how to react. It's only getting worse as his classmates move further and further ahead. He's still struggling to write a single letter they're all doing sentences.

It's only a matter of time until he's pulled out of mainstream, the syllabus is not for George.

dlockers · 6 Oct 2023 at 10:42

Whilst this thread is an attempt at mums net type discussion (not in an offensive way), I doubt people keep track of whose kids are less fortunate.

theone8181 · 6 Oct 2023 at 10:58

dlockers said:
Whilst this thread is an attempt at mums net type discussion (not in an offensive way), I doubt people keep track of whose kids are less fortunate.

I think that's the main issue. Whenever I discuss my kids and try and put ages/gender to make my point more obvious. If it had been said 'my child spat in a teachers face, but has learning difficulties', that's different and people would realise. Let's face it, there's so many of us on here, it's hard to keep track of who's who.

naefeart · 6 Oct 2023 at 11:16

Zenduri said:
...am i supposed to keep track of everyones kids/life or review their entire post history before I post something?

Absolutely not, but you could infer that perhaps you didn't have the best handle on the current thread/situation, before wading in with an arsey comment and then try to defend it.

A bit like the rest of us do before we post stuff. Just sayin'

dlockers · 6 Oct 2023 at 11:22

naefeart said:
Absolutely not, but you could infer that perhaps you didn't have the best handle on the current thread/situation, before wading in with an arsey comment and then try to defend it.

A bit like the rest of us do before we post stuff. Just sayin'

People never give me benefit of the doubt for being who I am

SixTwoSix · 6 Oct 2023 at 11:22

ci_newman said:
Did your Mother not teach you that if you don't have anything nice to say, don't say anything at all?

GD would die off overnight if this was a hard rule

/tangent

ColdAsIce · 6 Oct 2023 at 12:01

Just bare in mind, if you don't want to send your kid to a specialised School that fits his needs. You are going to have to implement discipline / right from wrong at some point. Teachers in main stream are going to expect a minimum level of behavior and engagement especially once High School comes into play. Dedicated support workers that your boy might have within School are also not there to discipline them either. That isn't part of their job and needs to be done at home / at a Teacher/pupil level.

robj20 · 6 Oct 2023 at 12:42

dlockers said:
Whilst this thread is an attempt at mums net type discussion (not in an offensive way), I doubt people keep track of whose kids are less fortunate.

theone8181 said:
I think that's the main issue. Whenever I discuss my kids and try and put ages/gender to make my point more obvious. If it had been said 'my child spat in a teachers face, but has learning difficulties', that's different and people would realise. Let's face it, there's so many of us on here, it's hard to keep track of who's who.

And yet ColdAsIce it perfectly well enough.

I don't feel I should have to explain it all every single time I post something.
You make it sound like we should mention it anytime we talk about him, I don't know about you but that seems sad.
To be he's just my boy I don't always see him the way others do and don't feel like mentioning it at every opportunity. Maybe we should get it printed on t-shirts for him so when he has an episode out and about people know not to call him a little ****.

But that's just me.

robj20 · 6 Oct 2023 at 12:45

ColdAsIce said:
Just bare in mind, if you don't want to send your kid to a specialised School that fits his needs. You are going to have to implement discipline / right from wrong at some point. Teachers in main stream are going to expect a minimum level of behavior and engagement especially once High School comes into play. Dedicated support workers that your boy might have within School are also not there to discipline them either. That isn't part of their job and needs to be done at home / at a Teacher/pupil level.

To be fair although I said teacher he currently has a retired teacher looking after him on a one to one basis and it was her he did it to. She only told us because she had to and said she knows he didn't mean it in a bad way towards her. She's been with him for two years now.
But yes it's becoming more and more likely he won't stay there. It was agreed with us and his EHCP and teachers that for Preschool it would be best for the social skills. But now it's turning to education not so much. He has the highest funding so it will be a simple switch.

dlockers · 6 Oct 2023 at 13:12

robj20 said:
And yet ColdAsIce it perfectly well enough.

I don't feel I should have to explain it all every single time I post something.
You make it sound like we should mention it anytime we talk about him, I don't know about you but that seems sad.
To be he's just my boy I don't always see him the way others do and don't feel like mentioning it at every opportunity. Maybe we should get it printed on t-shirts for him so when he has an episode out and about people know not to call him a little ****.

But that's just me.

That's fine, but you'll have to expect uninformed / people who don't follow the thread to bite.

james.miller · 6 Oct 2023 at 13:16

You say that like it's Rob's responsibility to stop people speaking before they think.

robj20 · 6 Oct 2023 at 13:17

dlockers said:
That's fine, but you'll have to expect uninformed / people who don't follow the thread to bite.

Clearly a different way of thinking. I try not to judge first.
It's like the people that constantly kick off at me for parking in the teachers car park at school when picking him up.
We've told the head she can explain why to everyone but she says it's non of their business.
People are so full of themselves, it's not because we can but because they can't. Shame really, it upsets me to think what he will have to go through for the rest of his life with people judging him.

ci_newman · 6 Oct 2023 at 13:25

robj20 said:
Clearly a different way of thinking. I try not to judge first.
It's like the people that constantly kick off at me for parking in the teachers car park at school when picking him up.
We've told the head she can explain why to everyone but she says it's non of their business.
People are so full of themselves, it's not because we can but because they can't. Shame really, it upsets me to think what he will have to go through for the rest of his life with people judging him.

Thankfully my wife and kids don't have any complications and my life is "simple" in that way, however my sister in law is wheelchair bound. Broadly speaking in the UK we are very accommodating to those with different needs, but it was heart breaking to watch when we recently went on holiday with her to Spain and the airport staff were openly laughing and mocking her

there were very few provisions in place for those with limited mobility either in some of the places we travelled

robj20 · 6 Oct 2023 at 13:43

ci_newman said:
Thankfully my wife and kids don't have any complications and my life is "simple" in that way, however my sister in law is wheelchair bound. Broadly speaking in the UK we are very accommodating to those with different needs, but it was heart breaking to watch when we recently went on holiday with her to Spain and the airport staff were openly laughing and mocking her there were very few provisions in place for those with limited mobility either in some of the places we travelled

Definitely depends where you go, and largely on the people there which is why we go to North Cyprus as much as possible. They'll go massively out of their way to help people the busses will go down people's drives and off route to drop elderly and such off, still a place where young will stand or even get off to let someone else sit or get on.
When we last went a restaurant that only had seating upstairs when we turned up with George in a pram they brought a table downstairs and set us up almost in their living room. I wish now places and people were like that, it's so refreshing.

t2na · 10 Oct 2023 at 08:23

ChrisD. said:
I don't know how our house would function without that woman.

So I'd never heard of 'Miss Rachel' until you and @Junglist mentioned her on this thread - and outside of the slightly odd 'Americanisms' she's actually brilliant.

Put it on in the morning on Sunday for a bit as I couldn't take watching Hairy McLary for the 600th time and our daughter really liked it! Got fully into the waving at the screen, saying the words back and pointing at the ducks and the cats. Appreciate the sort of 'non-direct' recommendation!

Junglist · 10 Oct 2023 at 09:58

t2na said:
So I'd never heard of 'Miss Rachel' until you and @Junglist mentioned her on this thread - and outside of the slightly odd 'Americanisms' she's actually brilliant.

Put it on in the morning on Sunday for a bit as I couldn't take watching Hairy McLary for the 600th time and our daughter really liked it! Got fully into the waving at the screen, saying the words back and pointing at the ducks and the cats. Appreciate the sort of 'non-direct' recommendation!

Yeah, she's amazing. I called her a hateful woman because it can get a bit repetitive but she is fantastic at what she does. It's funny the things our daughter has learnt from her especially the sign for 'more'.

I think my partner told me that Miss Rachel started because their child had speaking difficulties and there wasn't much content to help them out. She was a pre-school teacher and her husband was a broadway producer. Seems like the perfect match really.

I also suffer a bit of stochholm syndrome because i've gone from hating their version of the rainbow song to loving how they say 'violet'

EGuitarStar · 13 Oct 2023 at 16:54

Had our little 5 month old diagnosed with Infantile Spasms, worst news I've ever had. Just can't comprehend the pain I feel inside.

We are starting medication for him today. We picked up on something not being right about 2 weeks ago so have been told that it's really good we did this as early treatment is crucial.

I know others here have had the same happen to your children and I'm sorry as I know what you must have felt and gone through but I'd like to hear about how your children are doing now and how it changed how you looked after and cared for your little ones.

ci_newman · 14 Oct 2023 at 07:30

EGuitarStar said:
Had our little 5 month old diagnosed with Infantile Spasms, worst news I've ever had. Just can't comprehend the pain I feel inside.

We are starting medication for him today. We picked up on something not being right about 2 weeks ago so have been told that it's really good we did this as early treatment is crucial.

I know others here have had the same happen to your children and I'm sorry as I know what you must have felt and gone through but I'd like to hear about how your children are doing now and how it changed how you looked after and cared for your little ones.

I'm sorry for what you're going through, whilst I haven't had to deal with that my advice is to avoid "doing your own research" and going deep into the rabbit hole of internet worse-case outcomes.

Listen to your doctors and care providers and wait for them

robj20 · 14 Oct 2023 at 08:18

ci_newman said:
I'm sorry for what you're going through, whilst I haven't had to deal with that my advice is to avoid "doing your own research" and going deep into the rabbit hole of internet worse-case outcomes.

Listen to your doctors and care providers and wait for them

Agree with this. Not 100% on this especially bit see it can be somewhat related to epilepsy.
George is on medication well still trying different ones, it can take years to get a combination of them that works so you might be in for a long wait until things improve. It can be very frustrating when it feels like a medication isn't working but you have to go through the motions with each one.

Keep a diary of they haven't already asked you too, that way you can keep an eye when they happen. We were down what he wad doing at the time and just before, how long the spasm/seizure.

Junglist · 14 Oct 2023 at 10:20

Hope everything works out @EGuitarStar

We’ve got chicken pox in the house. Feel bad for her at 18 months old but then I rather her have it now than have it like I did at 15 years old.

Poor thing looks like Mr Tumbles spotty bag.