Caporegime
Tinnitus who suffers from it
- Thread starter Ixon
- Start date
I have it since my "mate" stuck a paper aeroplane in my ear and cut/damaged my eardrum. It was VERY painful and also humiliating at the time (laugh it up!). Years of clubbing and motorsports haven't helped, but since that day I have been suffering from a high pitch flashbang noise for probably 9 years now. I had my ears syringed which helped my hearing, but they are very cautious of that ear which took damage.
I don't wish this on anyone, it drives me mad when trying to sleep sometimes and is bad after a night out. Really hope they find something to make it better.
I don't wish this on anyone, it drives me mad when trying to sleep sometimes and is bad after a night out. Really hope they find something to make it better.
How long have you had it for?
About 3 years.
What brought it on?
It is a symptom of Menieres Disease, but I don't know what brought Menieres on :/
Does it bother you anymore?
Yes, as it makes me dizzier. The Menieres has 'cased' depression and anxiety too. /wreck.
And what sound do you hear?
All the time there is a very high pitched whistle, similar to the noise a TV makes when it's on. Occasionally there is a lower pitched whistle/ sine wave which is the one that causes dizziness to happen.
About 3 years.
What brought it on?
It is a symptom of Menieres Disease, but I don't know what brought Menieres on :/
Does it bother you anymore?
Yes, as it makes me dizzier. The Menieres has 'cased' depression and anxiety too. /wreck.
And what sound do you hear?
All the time there is a very high pitched whistle, similar to the noise a TV makes when it's on. Occasionally there is a lower pitched whistle/ sine wave which is the one that causes dizziness to happen.
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Soldato
How long have you had it for?
Just over 12 years now.
What brought it on?
I'm convinced it's something to do with Gulf War Syndrome but can't prove it! That and listening to too many M107 rounds being fired. I actually started to lose my hearing when in the Army and after years of tests it was confirmed that I actually had Menieres Disease.
Does it bother you anymore?
I'll say! Most times I don't really notice it except when it's quiet. However, at the moment I'm having a Menieres attack so it's working overtime.
And what sound do you hear?
High pitched whistle.
Just over 12 years now.
What brought it on?
I'm convinced it's something to do with Gulf War Syndrome but can't prove it! That and listening to too many M107 rounds being fired. I actually started to lose my hearing when in the Army and after years of tests it was confirmed that I actually had Menieres Disease.
Does it bother you anymore?
I'll say! Most times I don't really notice it except when it's quiet. However, at the moment I'm having a Menieres attack so it's working overtime.
And what sound do you hear?
High pitched whistle.
Soldato
I thought I was the only person to have this bloody awful illness! It's taken 12 years of my life away but only someone who suffers from it can truly understand that.
How bad do your attacks get? I'm having a cracking on right now and after I've posted this I'm off back to bed. I hope you're not having as bad a time as I am. Keep smiling
Caporegime
Heh...I said this to my GP. And they dismissed it entirely.
They practically said that the eyes and ears are not connected, therefore cannot cause the other to have issues? =/
Yet low and behold, if I was around a load of screaming children in a room, I would practically space out
Caporegime
I thought I was the only person to have this bloody awful illness! It's taken 12 years of my life away but only someone who suffers from it can truly understand that.
How bad do your attacks get? I'm having a cracking on right now and after I've posted this I'm off back to bed. I hope you're not having as bad a time as I am. Keep smiling
Hmm....Just looked this up...And I suffer from a lot of balance issues as well! =/
How would one get this tested?
How long have you had it for?
All my life, I cant remember a day without it.
What brought it on?
As far as I know, birth.
Does it bother you anymore?
No, I can only really hear it in silence or oddly when people talk about. (Since reading this subject I can hear it, damn you!)
Otherwise I just seem to block it out.
And what sound do you hear?
High pitched eeeeeeeeeeee, bit like after an explosive near your ear or after a night out.
All my life, I cant remember a day without it.
What brought it on?
As far as I know, birth.
Does it bother you anymore?
No, I can only really hear it in silence or oddly when people talk about. (Since reading this subject I can hear it, damn you!)
Otherwise I just seem to block it out.
And what sound do you hear?
High pitched eeeeeeeeeeee, bit like after an explosive near your ear or after a night out.
It's amazing how many people look at me in clubs as if i'm weird for wearing earplugs. I'll not deny it I used to be the same, but now I get quite a lot of people asking me why and i'll mention tinnitus and you see their faces change. I don't think people realise how much damage a single night in a club can do to you!
Soldato
Yup, completely agree.
Also, badly made noise cancelling headphones are terrible apparently as there is nowhere for the pressure to be released.
After posting on the thread today mine has really started to annoy me - large glass of red when I get home and an early night should do the trick.
Oh, and apparently some deaf people do still have these sorts of sounds - a friend of mine explained to me it's like a medium-high pitched hum.
Soldato
The morning after my first night out clubbing was dreadful, I could hardly hear a thing. After about a week the ringing had subsided but I know that it did some lasting damage as my hearing is still not as good as it was before I first came to uni. Every time I go for a night out one of the consequences is that for the next day or so afterward I have a loud ringing in my ears.
Soldato
This is what i hate about the Cinema. My daughter is 5 and only took her once and the sound was overbearingly loud!! It was a film for her age group too. She cried and we had to leave. Manager gave us a refund but they should know not to put it loud for toddlers.
How long have you had it for?
Since I was little, can't remember when! Earliest memory is probably around when I was 10/11.
What brought it on?
I have no idea!
Does it bother you anymore?
I don't notice it unless I think about it, or someone mentions it. Some guy at work thinks it's "funny" to keep mentioning it! It sometimes gets to the point where sometimes I only have to look at him to trigger it. After a few weeks of him staying quiet, this goes.
And what sound do you hear?
High pitched noise in my left ear, gets louder and quieter ramdomly.
Since I was little, can't remember when! Earliest memory is probably around when I was 10/11.
What brought it on?
I have no idea!
Does it bother you anymore?
I don't notice it unless I think about it, or someone mentions it. Some guy at work thinks it's "funny" to keep mentioning it! It sometimes gets to the point where sometimes I only have to look at him to trigger it. After a few weeks of him staying quiet, this goes.
And what sound do you hear?
High pitched noise in my left ear, gets louder and quieter ramdomly.
I thought I was the only person to have this bloody awful illness! It's taken 12 years of my life away but only someone who suffers from it can truly understand that.
How bad do your attacks get? I'm having a cracking on right now and after I've posted this I'm off back to bed. I hope you're not having as bad a time as I am. Keep smiling
My Dad has it, but apparently it's not hereditary. I don't know anyone else who has it.
I'm constantly dizzy and then have bad attacks too where I can't work out where the floor is. This will usually bring on a panic attack. I do walk with a stick when I'm out on my own because I'm conscious of looking like a drunk, and worried about falling over. Totally agree about it taking your life away
Delvis, it takes time to get diagnosed but initially you would need to go to the docs. I was originally told its labyrinthitis which is a virus, but after it didn't go away, I was sent to the 'dizzy clinic' for 'balance system training'. When this didn't work (basically its making yourself dizzy and then telling yourself you aren't...) they then said it was menieres and that's the end of it!
Regarding your eyesight not being connected to your ears, I learnt that 'balance' relies on three aspects of the body, sight, muscles and ears. So if you take one away, (in my case ears) then the others have to work harder. Also it's more difficult for me to walk in the dark or over rough ground as that's over using the other balance 'organs'. It's also why, as a symptom of having menieres, I'm very tired, as my brain is having to work hard all of the time.
Caporegime
heh, making me scared now!
My balance is pretty terrible, same as you if I walk in the dark I tend to walk zig zag like...
Wouldn't know where to start really. I was given glasses due to my working conditions (work on a PC all day, air con office, and I have dry eyes anyway) which has helped my eyes somewhat. But my balance is still a bit iffy.
No idea how I'd go to the doctors about it though, as they'd need a reason to refer me rather than my 'hunch'
Associate
- Joined
- 2 Sep 2007
- Posts
- 1,994
I've had this for a number of years now. My balance is fine though? It took a while to get used to the tinnitus but I hardly "hear" it now.
Associate
Yes unfortunately they would still hear it, there have been cases where people have had their auditory nerve severed so that they can't hear a thing but the tinnitus still remains after the procedure.
Associate
That would be because tinnitus and balance are totally unrelated, tinnitus itself can be brought on by a number of things. In the case of Menieres Disease as mentioned above tinnitus is just one of the symptoms alongside feeling dizzy, nausea, fainting, loss of balance etc.
My own severe tinnitus is purely down to noise damage after years of clubbing,concert and festival going and was made much worse after long sessions wearing headphones while gaming/watching movies/listening to music.
If there is one piece of advice I would give anyone who thinks they might already have it (apart from invest in some decent earplugs for going out) is be careful with headphones/headsets and avoid them if possible!
Associate
Had a slight ringing in my right ear for the best part of a month or so now.
I can only hear it when it's quiet in my room before I nod off, maybe this is it.
About a month ago I purchased an iPhone 5 which came with these oddly designed earphones, maybe they're not helping.
I can only hear it when it's quiet in my room before I nod off, maybe this is it.
About a month ago I purchased an iPhone 5 which came with these oddly designed earphones, maybe they're not helping.
Soldato
- Joined
- 6 Sep 2005
- Posts
- 3,781
Must be a terrible condition, people do commit suicide over it but it's not taken seriously. The missus & I went to see Skyfall the other day, not been to the cinema since LofR 3...not going again, it was so loud it was unpleasant.
Regarding headphones, easy test... Put em in, play music and if someone standing next to you can hear it in a quiet room its too loud!
Simple as that.
Regarding headphones, easy test... Put em in, play music and if someone standing next to you can hear it in a quiet room its too loud!
Simple as that.