News on Wife (reason for being away for a day)

Hello all thank you for all the support
It is really hard at the moment the issue when you have major surgery like this your bowel falls to sleep and with all the complications it is talking it's time to resync and that is meaning lots of pain huge amounts of diarrhoea and discomfort which is draining to the point of not even having the strength to type this message took me 3 hours to write
How can you help
Visit me please

Royal stoke hospital
Ward 109
Bed 24
Jason
Visiting time is 2 to 4 and 6 to 8

Only one person visits me and it is a good distraction
Sorry to ask
 
You are all great people ive messaged Bailey asked if ocuk has a basic gaming laptop spare I could loan, I am stuck in hospital for at least another week steam and some basic web stuff would be amazing, thank you for the game suggestion yes I have a phone tablet but it doesn't doesn't work very well, if ocuk says yes Trevor could come pick it up. He is my neighbour.
 
You are all great people ive messaged Bailey asked if ocuk has a basic gaming laptop spare I could loan, I am stuck in hospital for at least another week steam and some basic web stuff would be amazing, thank you for the game suggestion yes I have a phone tablet but it doesn't doesn't work very well, if ocuk says yes Trevor could come pick it up. He is my neighbour.
Doesn't seem like it's something ocuk can do.
 
Thank you for the offers and I'm sorry to the ones thinking I was asking too much over the last months I have been offered many thing and declined nearly all 18 pages of people offering to help and the moment I actually dare to think some may be genuine I am classed as trying to gain out of people.

I will take my leave now, I do not have the energy to play that game too the couple of people i got to know thank you, to the rest who seem to be part of # call on me if you need to for anything but if you do then you must be a scammer.

I just went through 2 months of hell was at a low point and asked for help sorry.

I really hope none of you face anything like this.
 
Okay i'm here, firstly my apology for how I acted.
I don't think anyone here can get how bad it was in hospital for me, it wasn't the surgery, it was being in the same hospital 2 floors from where Paola died, it was having no time to grieve before the cancer hit me, it was having no visitors for 10 days + 3 more days and nothing to do but spend time in my own head space.

I was at the point of giving up, after all what do I have to live for, no one at home, no real life friends, no Paola to see smile, in fact every day I live is one day further from being with her.

See to most of you computers are a luxury, games are a hobby, you have lives, career, people who care, you have family and children.

I am looking at 12 months of chemo cycles which will destroy my appetite each month, cause me to feel like hell and could cause complications, now if Paola was alive I'd face any problem, attack any challenge but without its really hard to see a reason.

Yes I know that I should be doing all this for Paola if nothing else.

Let me try to explain the loss, for 21 years I was part of a very close relationship, 18 hours a day every single day for 21 years, no breaks, no trips to the pub, no job, no days out with friends, no respite, not one single day in 21 years was I away from Paola for more that 15 minutes to walk the dog, Every hobby was shared, every TV show watched together, Every Film experienced together, not many people can imagine that level of togetherness, add on top the work and effort to keep Paola alive, the learning of each new problem, trained in new medical know how, dialysis.

Now imagine all that being taken away forever.

There is actually a medical condition called a broken heart, you hear about it sometimes when a husband or wife dies the other half dies days, months later just can't go on.

Both OCuk and people here kept telling me "if you need anything just ask" so I made the terrible crime of actually asking, asking for something that I knew would distract me, after all if you look back on my threads a lot of people have offered help but I have not taken them up on it.

it just pushed me over the edge when people started accusing me and I was in no fit state to respond so I just ranted and for that I apologise.


Thank you to those that defended me.

How am I at the moment.

I came home on the 13th, 2 days later I was back in because my temperature spiked to 39.2 and they were concerned it could be sepsis, they pumped me full of a lot of antibiotics and 2 days later I was back home.

I am very weak, my body hurts but happy to be home, next week I go to the meeting where we find out exactly how much chemo I will need and what the prognosis will be.

(what I actually asked for was a loaner an old laptop for a short term thats all, I did NOT ask for a freebie)

The laptop, I am now the owner of a rather nice CyberpowerPC Tracer Xtreme Gaming Laptop - 15.6" 1080p FHD, Intel Core i7-8750H, Nvidia GTX 1060 6GB, 16GB RAM, 240GB SSD, 1TB HDD, RGB Mechanical Keyboard, Wifi + BT, Windows 10.

When I got home I sold a few items on ebay, I max'd out a couple of my cards (not the most sensible but already paying them back) and now I do not have to worry about being in hospital for chemo without anything to do, a friend setup a small gofundme to help.

I was just looking for something to play older games on this thing will even do VR.


I am not a greedy person, me and Paola never were, I never sold an item on ebay to make a profit and if anyone ever wanted anything we could spare we did it, its just how we were built so when I responded to people offering to help I did it in the same idea because that is how I think.
 
At the moment I am taking it one day at a time, setting small goals, the biggest plus at the moment is well I gained a lot of weight while Paola was alive, no time for exercise, having to make really high calorie meals and comfort eating, my weight ballooned up to 134kg and even with my 6ft 2 that is a lot, well I am now down to 115kg which thank fully I still have a huge buffer, for someone who wasn't overweight to start with it would be dangerous. my appetite is through the floor but I am eating, just not a lot, unfortunately the chemo is also known to drop weight off you but I have at least another 25kg of spare tire.

I am seeing the weight loss as a positive, a future where I can pull off something other than jogging bottoms would be nice.

I am trying to get back into games, started playing AC Odyssey which was the last game she bought me for my birthday.

Sleep is challenging, I can now lay on my side (was never able to sleep on my back) but its a couple of hours at a time and a nap during the day.

I went for a walk today, wore myself out in like 10 minutes.
 
Glad you're out of hospital, I guess the weight loss is a positive at least, hang in there. :)

Maybe you could could self study something too in between the computer games? There are so many resources out there now covering different topics. Presumably you're in no state to work at the moment or in the near future but that could change after your treatment. A potential new career could be something to look forward to.

All good suggestions but the thing is i'm also under the Greenfield centre (mental issues) see I have reactive depression, ADHD and I score on the autism chart somewhere between Asperger and schizotypal (no that is nothing like schizophrenia).

The only thing that kept me somewhat sane was the focus on my wife.

I was told that my mental issues actually allowed me to cope and help look after my wife better, now she is gone its all going to be a very fun time especially seen as one of the main symptoms of Typal draws you towards a solitary life with only close and personal friends/family able to get a look in, now all that is gone its going to be a challenge.
 
I still think it is hard for some to comprehend just how important computers and games can be to some people, it is hard for them to understand because they haven't experienced it, to be locked out of the so called real world, to have your options reduced, most people can't even imagine the simple concept of not being able to go out your front door or not having that friend on the end of the phone to go out for drinks.

Computers and games are something almost magical, this screen in front of you is a window on to a world, a way to connect and distract beyond words, Paola dealt with a death sentence for 21 years, imagine that if you even can the idea that at 21 she was told she was going to die, no cure, no possibility of remission, no future that didn't involve her dying, imagine how you would cope with that simple absolute truth, then add in the disability, the friends who all disappeared because they couldn't cope with her mortality, a family that disowned her because and I quote "it doesn't look good on us to have a daughter who is ill and not working".

Only so much time can be spent watching the TV and when the illness affected her eyes only so much time reading books, Games became our adventures, became our world to exist in, monsters we could fight and win against. Battles we didn't have to lose.

Games and computers are now the same for me because It is really hard to exist in a world without her.
 
Okay lets break this all down because people still don't get it.

1)Yes I have two dogs a terrier and a staffie, I love them dearly, we don't go out walks but have two large back gardens for them to play in and they run each other ragged up and down the stairs (I am just not up to walking even myself let alone my dogs)

2)Remember I spent 20 years making sure Paola had the best entertainment systems, we have an Xbox one X. with gamepass and ultimate edition Forza Horizons 4 two controllers connected to a 4k 55" TV and both me and Paola used to play it together, I can't even turn it on now, the last car Paola drove was an old Jag and its still sitting there, I can't even touch that console without shaking and falling apart.

3)I have a Playstation 4, we were slowly playing through persona 5 together, I can't turn that on either.

4)We have a Raspberry Pi 3+B setup for Megadrive, Amiga, Master System and Original Space invaders hooked into a 47" TV, you guessed it, every time I even think of turning it on I start crying.

5)297 TV series (all owned and paid for transferred to HD) from original series Flash gordon, space 1999, Black Books, Black adder, Red Dwarf, Dr Who (old series), AutoMan, Streethawk, Airwolf..

6)4700 B movies from the 50's to the 90's mostly Science fiction or horror also every single newer movie from Hobbit to Infinity wars to Dead pool 2 and Solo

7)Virtual Reality, Oculus Rift with 3 sensors for room scale hooked into a 4690k 1070 system, HTC Vive Pro hooked into a 6700k EVGA 1080ti system.

7)Dual steam clients with over 1,200 games between them.


Those even suggesting I get out have absolutely no clue of my situation, let me put in perspective, when I put my situation in detail to both Samaritans psyche evaluation and the therapist I have been assigned, no one has any answers, ADHD+Schizotypal+grief+bowel cancer+no family+no close friends+no children puts you in a dark place you may never get out of and if I do it will be through a monumental battle of will with myself every day for the rest of my life and for what?.

As I said what would really help is a few friends, come over once a week once I'm feeling better, we can watch movies, we can VR we can play Forza, I will even provide food and drink and once the weather gets a little better BBQ is on the cards, you will find me a pretty cool host.

That is what is missing, I need to restart using all this entertainment equipment for the reason it was meant for, I want to watch people playing superhot and falling on there ass, I want to look ridiculous fighting off zombies.

But I don't want to do it alone.


Do not tell me that staying in and gaming is unhealthy that is pseudo healthline ******** lack of friends lack of company THAT is unhealthy, but how does someone like me find people willing to pop over for a blast, that's the issue.

Its icy outside, I can't chance going for walks outside, if I fell over and pulled the wound or damaged the colon it would be REALLY bad, for the next 8 weeks I am not allowed to lift anything beyond an 4lb shopping bag.

So gaming and VR, (I just updated my SkyrimVR) Natural locomotion software walking/jogging on the spot and exploring Skyrim, is actually really good exercise.
 
I think it's actually quite harsh calling people pond life when this is quite a strange story.
I guess people are different but I and I'm sure plenty of others wouldn't think to ask to loan a laptop from a business when clearly disposable income isn't an issue with all of the kit he has at his disposal.
I'm not meaning to be harsh or insensitive but it just doesn't sound right.

To get the laptop for future hospital time I had to sell items online, the specific items are a samsung tablet and phone that were my wifes (no need to keep them). I have NO disposable income and it will take months to pay back the cards, but those months I will be spending in hospital and the laptop is far more important.

I have been completely open about my situation, I explained in this and other threads, I gave up my career 21 years ago to look after my wife, the ONLY income was disability + basic benefits, the ONLY reason it looks like we have good equipment is, no rent, no car, no smoking, no drinking, no parties, no nights out, you will find that if you budget well that allows for what become necessities, a living room turned into a bedroom (a forum member has actually visited) a 55" screen to allow my wife while she was alive to see the screen from her chair as if viewing a 28" monitor.

Gaming consoles and items that to many would be a luxury were needed to have any kind of life.

It may sound strange to you to ask a company who in Bailey's own words "if you need anything just ask" just the same a lot of members of this forum offered the same.

Now as if this is unusual ?

I just thought a company like Overclockers might have an old laptop hanging around I could loan for a few days in hospital, was that really so wrong ?

After all before Paola got ill I worked in a local computer shop, not a big place but we had spares and often helped out needy people, we actually put together computers with parts that were returns and below spec for anything we sold and just gave the computers out to needy families in the area.

So from my point of view what I asked was nothing strange.

Kinda glad I live in my world not your's Shure.

Because in my world after Paola died, I gave away freely all of my wife's hundreds of pounds of crafting equipment and supplies because that was the right thing to do and would have made her happy.
 
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All well wishes and respect to you, but I don't understand why you keep writing these tirades about how many different bits of tech you have. I'm not sure that anyone wants to know five times over that you have 297 TV series (why even bother paying for them btw??).
Why not pay for them? (people keep offering advice on what to do with my time, suggestions of get yourself a console, do this do that).
Over the years we bought the series so we always had access to them it is amazing the rewatchability of some of these series and once you own them then you do not need to base your media on TV or Internet or streaming.

Hook those TV series into Plex, setup a nice media server with 28TB of stuff and every tablet, computer and phone either in house or hospital means you can watch your favourite series or movie any time day or night, remember when you are stuck in a house 24/7 when at 3am you need something to distract you, you can hope that something is on the channels or you can watch any series any program any film you want from your own library.

We also had this weird idea that if we liked something we bought it, we both loved Red dwarf so why not own all the series, we both love futurama why not own the series.
 
Well I got to test out my laptop last night, I had an issue and because it was within a week I got fast tracked back to the SAU ward (Surgical assessment Unit) it was a non issue but I got there at 9pm the Consult on call had just been called into theatre so it was 5am before I got seen, took the laptop with me, played some AC Odyssey, watched some Netflix and all in all the time passed okay, came home and slept most of the day.

I am 6ft 2 and most hospital beds are short on me, that plus the surgery means its very hard to sleep in an unknown bed especially with all the noise that goes on, one important point is off mains power playing AC:O the batteries were down to 33%, once I stopped gaming and started watching netflix that 33% left extended to another 3 hours, (yes there was a plug socket for us but it was a good test).

As for those being negative and cynical thank fully they are in the minority and I just hope none of them face anything like this myself, its not something I would wish on anyone, its not something that you can teach people although if we could then more people would make more of what they have and be nicer to others.

We are all humans, we all have feelings, we all have loves and bad things can happen to anyone at any time, I hope you all have amazing long life's filled with happiness and love, I hope you get to spend all your time with those you care for and that you make sure those that matter know it.

No body expects illness, cancer, death, no one is better setup to cope, no one can tell you how it will feel and you will get people who haven't faced it telling you "time will heal" or "it will get better", I've talked to widows who thirty years later are still in pain from loss as if it happened yesterday.

I don't know what my future holds, I'm taking one day at a time, I'm listening to audio books (monster hunter international atm then I plan on the Dresden files), I distract myself with games for a little while, I try to plan for a future and I spend hours talking to my Wife as I look at her picture while crying.

The thing is rationally I know what happened was for the best, She fought for 21 years, things were getting worse, she couldn't eat without choking, even though the dialysis was working it was flushing out the medication that kept the cancer away, she only had 14% of her heart still working, she felt no pain at the end and died playing her favourite game and listening to music with just a "my chest feels funny" moment she knew I love her and was smiling and laughing that last hour with the nurses.

There is far worse ways she could have gone far worse I saw some of them.

And then there is my illness, no way I could have gone through with the bowel surgery if she was still around, so yes I know it was the best way for her to go ever (if you ever have someone really ill in your life, in pain and you can't make it better, that moment you hope they die in there sleep all peaceful like, you will know what I mean) she never had to know I had cancer, she never had to worry about me.

Even though I know damn well it was for the best I've lost my reason for living and i'm scrambling to find a new one.
 
Tomorrow is when I find out the prognosis, since my operation on the 3rd tests were run on what was removed, they will have checked for type and stage, whether it breached the bowels and if the lymph glands were affected, I will know how much chemotherapy and what other treatments will be needed, wound is healing okay, still painful but okay.

I will let everyone know after the appointment.
 
Wooooooot!

Type 3 tumour which meant it had passed through 3 layers of my bowels BUT importantly had not breached externally,
38 lymph nodes removed (all the ones that serviced the part of the bowels removed) no cancer growth or cells,
Vascular areas feeding that part of the bowels clear of cancer cells,
Surgical area as in the parts they have to cut into to remove, which if it had cancer cells would have spread it to rest of body, Negative for cancer cells.

I still need to see the cancer consultant to decide on chemo but because of the results the risks of chemo may outway the the rewards thus I may not need chemo.

Time for a take out I think.
 
Hehe awesome, keep them away from the hotsaucetho :eek:
what do you think I am crazy, I had the mild version but I don't think it was wise, my stomach is complaining, okay so Burrito even mild version is not something I can eat anymore, we live and learn.

Going to have an early night was up all last night worried about this meeting.

Note to self nope nope nope Burrito nope damn this hurts.
 
I think that I really needed this, it was like a wall in front of me moving on in any positive way, I mean how do you focus on life after loss if death and cancer is hanging over you, for the first time today I actually feel a little better.

I still cry a lot and miss her terribly but I feel like I can actually take a step.

Going out at the moment is a no no, the risk of falling or slipping that could rupture the bowel surgery or the 29cm stomach wound is not something I want to mess with, lets face it less than 4 weeks ago I was on an operating table for 6 hours with my intestines being played with, I am very lucky with the results.

But I can exercise in the house using virtual reality.

Natural Locomotion allows you to in most VR games (open worlds) walk/jog/run on the spot and have it translate to movement in game.

Couple that with SkyrimVR and FalloutVR and your exercising without even knowing you are doing it.

Now having a 15ft by 15ft room for VR has possibilities.

This does not mean I am closing myself off, I love to walk, you have to remember that when Paola was alive we often took 10 mile+ adventures with her in a wheelchair and me pushing her, basically anywhere it was possible to reach on foot and chair in stoke on trent we got there.

But my healing is going too well to chance doing any harm by going out on unstable slippy ground.

Also while I never got into Beat Saber I do like Fruit Ninja VR and AudioShield.

All of that will give a good cardio work out and the FalloutVR/SkyrimVR will strengthen my legs.

I am down to 114kg from 134kg and I do plan on keeping the weight off.

On another note the surgery and time in hospital has given a serious hit on my stamina, I just played 30 mins of Arizona Sunshine and I am completely shattered, feel like I have run a marathon. Got to remember to take it easy.


Once again the offer is there if anyone in the area wants to come over for a VR party, I will provide food and conversation, or just to chill and watch bad 90's B movies the offer is there, just trust message me the only condition is (not if you have flu/cold).
 
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I had a walk around Hanley today, needed to put some money into the bank, I don't think it ever changes Money goes in bank money comes out of bank.

Got a bit of a sore throat but no temperature just a cough pretty sure its the end bit of one of those nasty colds we get over winter that leave you with a cough for weeks at a time. (I know damn well its not some sort of evil cancer thing because I've had so many scans and checkups).

Still tired and the most annoying thing is I need to wait another 3 weeks before I can hoover the house and give it a good clean.

Started watching the Marvel cinematic films from the start (Hulk) up to Winter Soldier now, it is such a pitty DC didn't stick with convictions/movies and keeps trying to reboot, they need to realise Marvel didn't force the issue, every movie stood on its own with just a little nod to the universe, DC keeps trying to play force catchup sticking too many people and plots in one movie.
 
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